Established in 1983, Hemophilia Federation India is a self-help NGO run by Persons with Hemophilia themselves, with help from medical fraternity. We represent India as National Member Organization at the World Federation of Hemophilia based in Canada. We also work in close collaboration with World Health Organization (WHO) and National Aids Control Organization (NACO).
Registered under Societies Registration Act XXI of 1860: Registration No. 15342 dated 26/02/85. All Donations to HFI are 50% Tax Exempted under section 80G of Income Tax Act, 1961.
Donation towards project on “Extending Hemophilia Care to Person with Hemophilia through Chapter Empowerment” is 100% Tax Exempted under section 35AC of Income Tax Act, 1961.
FCR Act 1976: No. 231650667 dated 20/04/93.
Partnership with NACO (National AIDS Control Organization), Government of India. Licensed to Import Life Saving Drug - Anti Hemophilic Factor (AHF).
Our Major Success
We have a network of 79 chapters (62 affiliated and 17 Non-affiliated chapters) spread across India.
We are the only organization in India that provides structured training to our medical and paramedical practitioners.
We have two International Hemophilia Training Centers at CMC Vellore and KEM Hospital Mumbai. Physiotherapy College in Pune trains physiotherapists for Hemophilia care and St. Stephens Hospital in Delhi trains laboratory technicians in running standardized Hemophilia tests.
We have made WHO standardized diagnostic tests available to our PWH. In addition, all Chapters are attached to diagnostic facilities locally.
Our Special Needs Cell for HCV/ HIV positive PWH supports them by providing lifelong subsidized treatment including Anti-Retroviral Therapy Drug.
We also have started National Hemophilia Registration (Record) to locate undiagnosed persons and children with Hemophilia.
We have been able to update records of support to more than 16,000 Persons with Hemophilia in our national Hemophilia records.